deCODE Yourself into a Million Pieces, for Under a Kilobuck?

Sunni's picture
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Yep, you can peer into your genetic code, without a medical monopolist’s permission slip required, for just under $1,000 USSA. The company offering this deal is deCODE, in Iceland.

deCODEme is one of those sound-bite web sites, where each page has barely a smidge of helpful information among the cool techno images and white space, so I’ll quote from deCODE’s press release, deCODE Launches deCODEme™:

deCODE genetics ... today announced the launch of deCODEme™, a pioneering service that enables individuals to get a detailed look at their own genome.

Through your subscription to deCODEme™, you can learn what your DNA says about your ancestry, your body --traits such as hair and eye color-- as well as whether you may have genetic variants that have been associated with higher or lower than average risk of a range of common diseases. This information will be continually updated as new discoveries are made.

Subscribers will create a secure password-controlled personal account. Just a few weeks after sending in a simple cheek swab, customers will receive expert analysis of more than a million key variants across their genome, accessible through an easy-to-use and intuitive user interface.

With deCODEme™, your DNA is in the hands of a global leader in human genetics. In more than a decade of pioneering research, deCODE has analyzed the genomes of hundreds of thousands of people from around the world, developing an unrivalled track record in gene discovery, in systems for genetic analysis, as well as data and privacy protection. deCODEme™ puts this expertise to work for you. The introductory promotional price of a subscription to deCODEme is $985. Starting today, deCODEme™ is accepting subscription orders and we will be soliciting feedback from these first customers to optimize the service experience. To learn more about deCODEme™ and how to order, visit www.deCODEme.com ....

deCODEme™ is a unique way to get to know yourself better -- from the inside out. Our genomes are more than 99% identical, but in that one percent are millions of tiny variations that make you unique. Through deCODEme™ you can take steps toward learning how your genome makes you unique, in the context of cutting edge science and in ways that are both fascinating and informative. You can learn about your ancestry, about obvious and potentially quirky traits, and whether you have certain genetic variations that are known to be associated with an above or below average risk of certain common diseases. You can even decide with family and friends to compare genomes and discover which blocks of DNA code you share. As new discoveries are made, you will receive updates and be able to check your genome against the breakthroughs in the headlines.

When you open your deCODEme™ account you create your own username and password and have full control of information and data comparison with your friends and family. You can even create an anonymous account if you wish. And if you have questions, you can consult with our experts at no additional cost. Best of all, you have the peace of mind of knowing that deCODEme™ is offered by deCODE genetics – a proven leader in the field. When your DNA comes to us, our expert staff analyze it and post it to a secure web portal right here at deCODE. Neither your sample nor any of your data will be accessible to or shared with anyone but you and those that you designate.


So, who’s game? If that price is a bit out of reach for you, what price would entice you to swab your cheek for a look at your genes? (There are two other companies that have just announced or will soon be announcing their offerings and prices; the couple of reports I saw expect their prices to be around a grand too.) If you did it, would you look at everything, or would there be some “don’t look” areas for you?

I think I'll take a pass...

With deCODEme™, your DNA is in the hands of a global leader in human genetics.

That says a lot to me. Like any other information you give out I have to wonder what they might do with this. Resell it to the highest bidder? Use it for research and development or who knows what? My curiosity isn't piqued enough to either spend the money or grant someone license to my genetic code. As the resident family genealogist I know where many of my traits come from, (physical and medical), so I don't really see the need for a gene screening. I think I'll have to take a pass on this one. If they ever come up with a home test then I might reconsider.

Wired has a very good

Wired has a very good article on this.

Interesting that you should ask if there are any "don't look" areas. From the article:

This new age of genomics comes with great opportunity — but also great quandaries. In the genomic age, we will no longer have the problem of not knowing, but we will face the burden of whether we want to know in the first place. We'll learn what might be best for us in life and then have to reckon with the risk and perhaps the guilt of not acting on that knowledge.

For me, having more information is better. After all you always have to option of ignoring it. If you do not have the information, you do not have the option of using it. Having more options is better. This is both intuitively correct (for me) and supported by Game Theory.

But then again I have never suffered from guilt. Mistakes that I make are things that need to be corrected. Some actions are not "optimal", such as having fired food and two beers yesterday, but I do intentionally, are not mistakes. Simply something that I am willing to pay the price for. In neither case do I feel guilt.

Things like this remind me that despite how bad things are in the world and despite the very wrong direction many governments (especially those in the English tradition) are taking, many things are getting better. In some cases much better.

I agree about privacy. I'll wait until either there is a good anonymizing protocol in place or a home test kit. But this is a great first step.

The fact that any consumer with $1,000 can now capitalize on this project is a rare case of groundbreaking science overlapping with an eager marketplace.

We will see more and more of this. The prices will drop and there will be home kits. We are living in a Brave New World. It is largely up to us how we make use of it.

We’re more than just genes

Michael, tempted as I am by this prospect, if I had a kilobuck to burn I wouldn’t burn it on this, precisely for the privacy and security issues of farming the decoding out to someone else and letting them store my data.

Jorge, I appreciate your excellent points. Also, thanks for the pointer to the Wired article; I don’t go there very much any more, as the quality and pro-freedom content of articles seems to be dwindling ... and their new structure is a mess to me.

For the record, if the price were to drop by about half, I think I might be seriously tempted, privacy concerns notwithstanding. Even though I know we are more than just a composite of our genes, being able to peek at them has always fascinated me.